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New York State Adult Tobacco Use
Survey
The New York Adult Tobacco
Use Survey (NY ATS) is a currently ongoing random digit dial telephone survey
to monitor trends in tobacco use and tobacco related knowledge, attitudes, and
behaviors throughout New York
State. The survey has
been conducted quarterly since June 2003 in both English and Spanish, resulting
in approximately 2,000 completed interviews per quarter (8,000 per annum).
Methodology for NY ATS is based on guidelines established by the Centers for
Disease Control (CDC) for the Behavioral Risk Factor Surveillance System
(BRFSS). The New York State Department of Health (NYS DOH) funds the survey and
has contracted the Research Triangle Institute (RTI) for the data collection,
who in turn has sub-contracted the Survey Research and Data Acquisition
Resource (SRDAR) in the Department of Health Behavior at Roswell Park Cancer
Institute. In brief, the target population for NY ATS is smoking and
non-smoking adults 18 years of age or older living in New York households. The random digit dial
(RDD) sample selection process includes an initial pre-screening of sampled
telephone numbers using a commercial service to identify non-working numbers.
The RDD sample is then supplemented with a list-based sample. All phone numbers
in the sample which have a corresponding directory-listed name and address are
sent an advance letter to briefly describe the study and to notify residents
that interviewers will be contacting them to formally invite their
participation. Once these residents are contacted, subject selection is
achieved from among all age-eligible adults in the household. When an eligible
sample member is identified, the interviewer obtains informed consent and
attempts to complete the interview at the time of screening. In 2008, we have
achieved quarterly AAPOR #3 response rates ranging from 31% to 39%, when
focusing on the portion of the sample that is in New
York State but
outside of New York City.
Gilda Radner Familial Ovarian
Cancer Registry Project
In collaboration with the
Gilda Radner Familial Ovarian Cancer Registry, we are collecting and updating
family history information and family medical information to help facilitate
research on familial ovarian cancer. It is anticipated that this registry will
lead to improved detection of high risk families and individuals, reliable
predictive testing for cancer predisposition, and an understanding of the
molecular events that result in cancer predisposition and cancer development.
We update approximately 100 family pedigrees per month by contacting an average
of 200 individuals regarding their family tree. In collaboration with the
Gilda Radner Familial Ovarian Cancer Registry, we are collecting and updating
family history information and family medical information to help facilitate
research on familial ovarian cancer. It is anticipated that this registry will
lead to improved detection of high risk families and individuals, reliable
predictive testing for cancer predisposition, and an understanding of the
molecular events that result in cancer predisposition and cancer development.
We update approximately 100 family pedigrees per month by contacting an average
of 200 individuals regarding their family tree.
In collaboration with the
Gilda Radner Familial Ovarian Cancer Registry, we are collecting and updating
family history information and family medical information to help facilitate
research on familial ovarian cancer. It is anticipated that this registry will
lead to improved detection of high risk families and individuals, reliable
predictive testing for cancer predisposition, and an understanding of the
molecular events that result in cancer predisposition and cancer development.
We update approximately 100 family pedigrees per month by contacting an average
of 200 individuals regarding their family tree.
International Tobacco
Control Policy Evaluation Project
The
International Tobacco Control Policy Evaluation Project (ITC) is an ongoing
multi-national telephone survey which is used to evaluate government policies
regarding smoking and their impact on smoking habits. The ITC study began in
2002, and in 2008, a web version of this survey was successfully created and
implemented in conjunction with the phone survey. The initial phase of the ITC
Project is a random-digit-dialed phone survey of over 8,000 adult smokers
throughout four countries: Canada,
United States, United Kingdom, and Australia. This initial study
follows a panel of participants over the next five years, and incorporates
Framework Convention on Tobacco Control (FCTC) initiatives that are likely to
be implemented over the next four years in at least one of the four countries
with a series of multiple natural experiments. The seventh wave of the ITC
project was successfully completed in May 2009. The surveys are approximately
45 minutes in length, and are completed in both English and French.
Western
New York Adult Tobacco Use
Survey
The
Western New York Adult Tobacco Use Survey (WNY ATS) was a telephone survey founded upon the New York
State Adult Tobacco Use Survey (NYS ATS) in 2005 to assess the efficacy of
various local level tobacco control interventions, as well as Western New Yorkers’
knowledge, attitudes, and beliefs about tobacco use. The target population was
adult smokers 18 years of age or older living in the Western New York counties
of Erie, Niagara, Genesee, and Orleans. The random digit dialing process and
questionnaire used for the WNY ATS was the same as that of the NYS ATS
administered during the same time period. The WNY ATS was instituted between
April and June 2005 when 428 adult residents living in Erie,
Genesee, Niagara and Orleans
Counties were
over-sampled in addition to the sample obtained from the NY ATS. 184 of these
428 individuals were followed up as part of the 2006 WNY ATS Cohort Survey (43%
response rate) and an additional sample of 309 smokers were identified and
interviewed through random digit dialing as part of the 2006 WNY ATS
Cross-Sectional Survey. Between May and August 2007, 286 of the 493 individuals
who originally participated in the 2006 WNY ATS surveys were followed up in the
2007 WNY ATS (58% response rate). A total of 100 participants who originally
completed the 2005 WNY ATS were successfully followed in both the 2006 and 2007
WNY ATS surveys.
A Survey of Smokers Regarding
Low-Ignition Propensity Cigarettes and Fire Risks: Ontario
The purpose of this study
to was to identify the prevalence and correlates of behaviors related to the
risk of cigarette-caused fires in a cohort sample of Ontario smokers. Smokers were selected based
on a Random Digit Dialing method. The study population consists of 596 current
cigarette smokers in Ontario,
Canada. During
the recruitment, qualifying respondents (those at least 18 years old who were
currently smoking at least some days) were asked to participate in a 15-minute
survey on smoking being conducted by Roswell Park Cancer Institute. Respondents
were told they would receive a small payment (CDN$15) to thank them for their
time and assured that their responses were strictly confidential. Respondents
were told that they would be contacted in approximately 12 months time to
complete a second 15-minute survey, for which they received a second payment of
CDN$15. The baseline data was collected in July through September 2005 (n=596),
and a follow-up was conducted in July through September 2006.
The QuitGene Study: A
Mail-Based Mouthwash Collection Study to Obtain DNA from a Geographically
Dispersed Cohort of Current and Former Smokers
The purpose of this study was
to link survey data from the National Cancer Institute’s Community Trial for
Smoking Cessation (COMMIT) with genetic data derived from buccal cell samples
from saliva, obtained through the mail. SRDAR’s role included the biologic kit
assembly, shipment, tracking, receipt, and coordination of lab analysis. The
study population included the 4,607 people who participated in telephone
surveys as part of the Community Intervention Trial for Smoking Cessation
between 1988 and 1993, completed follow-up surveys in both 2001 and 2005, and
consented to receiving the DNA data collection materials in the mail. The
survey data for the COMMIT study was collected by a subcontractor (WESTAT). In
order to complete the biologic data collection, we worked closely with WESTAT.
Confidentiality of the participants was stringently maintained, with ample
coordination between investigators and WESTAT to ensure compliance. Sample
collection kits were mailed to the participants in July through October 2005.
The kits contained (a) a personalized cover letter and consent form, (b) a
check for US$10, (c) a 40-ml collection container with a screw-on lid, (d) a
sealed 44-ml bottle of Scope mouthwash e) a postage-paid, pre-addressed return
mailing envelope and leak-proof zip-lock bag for the collection container, (f)
instructions for participants. The all-inclusive cost per sample received was
$33.00. A total of 1,943 usable samples were returned (42%).
Adoption of the HPV
Preventive Vaccine: A Study of Knowledge, Attitudes, and Beliefs Among Students
at The State University of New York at Buffalo
The purpose of this study was
to survey students at The State University of New York at Buffalo (SUNY
Buffalo) to assess their knowledge,
attitudes, beliefs, and intentions related to the new HPV preventive vaccine.
The primary objective is to collect valid and reliable data from a sample of
college students attending SUNY Buffalo for the purpose of assessing knowledge
and willingness to take advantage of the newly approved quadrivalent HPV
vaccine. The study population consisted of 500 students who were enrolled in
sections of General Psychology (PSY 101) during the spring of 2008. General
Psychology is a general education course which includes students across
different majors and class levels at SUNY Buffalo. As part of the course
requirement, students in PSY 101 could elect to participate in eligible
research projects, by registering through the Experimetrix system. A survey
description was presented on the Experimetrix website and students had the
choice to register to participate in the survey in exchange for PSY 101 credit.
Students who registered to participate in this survey in exchange for course
credit simply clicked on a link to the web-based survey informed consent page.
Upon consenting, the student was then directed to the survey page. Students who
signed up to take the survey, but did not complete it after 7 days were sent a
reminder e-mail asking to complete the survey at their earliest convenience.
The survey ran from February 11, 2008 through March 31, 2008. The final sample
size was 490. The median age of the sample was 19.4 and 51.4% of the population
were females.
Quit the Smokes
“Quit the Smokes” was a
quit and win contest that was held from January 15th to February 15th, 2007.
3,841 smokers from the Western New York
population entered “Quit the Smokes.” Evaluation interviews were completed in
July and August, 2007 using a bi-modal method of data collection. A sample size
of 473 participants was randomly selected to be followed up, with 222
successful interviews completed (overall response rate=47%). During the contest
promotional period, participants registered and provided their contact
information. Entrants that supplied an e-mail address were sent an Internet-based
survey (n=331). A random sample of those that did not provide an e-mail address
were selected for a SRDAR telephone interview (n=142). Initial non-responders
of the Internet survey were randomized to receive reminder e-mails for the Internet
survey (n=157) or to complete the interview by telephone (n=149). 38
participants completed the Internet-based survey (response rate=20.9%); 97
participants completed the phone-only survey (68.3%); and 87 participants
completed the telephone interview after receiving the initial request for the Internet
survey (58.4%).
Promoting Tobacco and
Cancer Control: Message Framing for Telephone Quitline Callers
This study was a
collaboration with researchers from Yale
University which
evaluated types of Quitline techniques. This study had two phases, the first of
which involves the development of new printed materials and protocols and the training
of new Quitline counseling techniques. The second phase was a pilot study which
evaluated the effectiveness of these new techniques. 2,500 participants were
recruited from a pool of English speaking residents who called the New York
State Smokers’ Quitline. The callers were counseled and sent printed material. Three
months after their initial contact, these Quitline clients were asked to
participate in a follow-up survey, which assessed the success rates of
cessation within each of these conditions. A total of 1,288 participants were
successfully followed-up, for a response rate of 52%.
No Strings Attached
This
study was conducted in collaboration with the Task Force for Tobacco-Free Women
and Girls. SRDAR worked to develop a baseline and follow-up survey and
administered these surveys to organizations that serve women and girls across New York State.
The surveys were designed to assess the organizations’ attitudes,
policies and practices regarding sponsorships and donations from tobacco
companies and to measure the effectiveness of an intervention to motivate
policy change. Organizations were given the option of completing the survey
over the phone, or having it mailed, faxed, or emailed to them. 311
organizations were interviewed at baseline. The follow-up list consisted of 271
organizations; of those, 188 completed the follow-up survey (69%).
Pilot Study to Assess the
Association Between Second Hand Smoke and Selected Physiologic Measures
The purpose of this study was
to explore the relationship and association of exposure to second hand smoke
(SHS) and specific physiologic indicators. In this study, the staff members
involved visited participants’ homes to collect baseline data and instruct
participants on how to properly use data collection devices. The data collected
included both physiological data and written questionnaires collected and
completed by participants daily over a two day period. After these two days,
the data was analyzed to find the association between the exposure to SHS and
the physiological indicators being examined.
The Data Bank and BioRepository
Project
The Data Bank and
BioRepository (DBBR) is an inclusive bank of data samples from willing
participants who have been diagnosed with cancer. By obtaining a blood sample
and questionnaire from participants, researchers analyze and interpret data to
study the prevention, etiology, and treatment of different types of cancer. The
information obtained through the questionnaires includes medical and smoking history
as well as current diet and lifestyle habits. The information provided by the
blood sample and questionnaire is used find connections of clinical risk
factors for cancer. The DBBR is able to use this data for multiple studies that
have diverse interests and goals. When completed questionnaires were returned
to Roswell Park Cancer Institute, they were carefully examined for any
imprecision or vagueness. Within a week, telephone interviewers contacted
participants, practicing specific confidentiality practices and obtaining the
informed consent of each participant before proceeding. Through careful
communication and attention to detail, interviewers were able to gather more
precise and accurate information from participants. When the data from
questionnaires was at its most precise and accurate, it was returned to the
DBBR to be used in research. Within the past year, approximately 2,000
questionnaires were handled by telephone interviewers in a timely manner for
the most efficient and advantageous use possible.